The Center for Jewish Genetics’ carrier screening and education program is a subsidized genetic screening program now available on demand!
Read on to learn more about the Center's carrier screening and education program and click here for FAQs and more information on carrier screening.
Reaady to get screened now? Click Here to continue to the Center's Consent Form and follow the instructions to begin our online educational course.
At this time we are only able to screen those who live in Illinois – if you live outside of Illinois, please contact the Center and we can help you find a local screening option.
You may also visit our local resources page to identify a genetic counseling service near you.
The Center was the first community screening program in the nation to exclusively use an advanced gene sequencing screening panel using saliva. This new gene sequencing test is the most advanced carrier screening option available and provides the same high detection rates as tests using a blood sample. The saliva sample allows us to provide you with high quality screening all from the privacy and comfort of your own home.
If we determine that you are not eligible for this program, we will provide you with an explanation and discuss your alternatives.
What does the program include?
You can complete the program in five easy steps:
- Complete your registration below.
- Complete a short online educational course that you can access at any time.
- Speak one-on-one with Center staff to address any remaining questions.
- Receive your saliva collection kit at home and send the completed test back to our lab partner.
- Get your results from the Center’s Genetic Counselor.
If you are ready to proceed, continue to the Center's consent form.
Otherwise, continue reading for more information.
Who is eligible?
The carrier screening and education program is tailored to men and women of Jewish descent and their partners, whether Jewish or not, in the state of Illinois. If you live outside of Illinois, please contact the Center regarding local screening options that may be available to you. Should an individual or couple not have sufficient insurance coverage for this testing, they will be eligible for subsidized screening. Insurance coverage for carrier screening tests varies greatly by company and plan, so please check with your insurer first.
How much does the program cost?
Screening for genetic disorders can be very expensive if it is not fully covered by insurance, with out-of-pocket costs as high as $4,000 or more per person, depending on co-payments and deductibles.
Cost of this screening
EFFECTIVE TUESDAY, AUGUST 4TH
Effective August 4, due to changes in insurance regulations, the Center and its laboratory partner are no longer able to guarantee a maximum out-of-pocket cost of $199. What does this mean?
· For approximately 2/3 of our patients, we expect that the out-of-pocket cost after deductible will remain below $199.
· Beginning August 4th, 2015, every registrant will receive an email or text from the lab with a billing estimate within 48 hours of requesting a saliva kit, which will clearly outline patient responsibility up-front. (You can also check your own insurance coverage via Counsyl’s Price Estimator tool to see what your out of pocket responsibility may be: https://www.counsyl.com/price/. Please select Family Prep for “Which screen should we ask your insurer about?”
- Your estimated out of pocket costs is largely dependent on your yearly deductible and how much of that deductible you have met. If you have not met your deductible for the year then it is possible to receive a price estimate of up to $1,500 which is the cost of the testing.
· For those who are uninsured or under-insured, you may choose a self-pay price of $349 within 48 hours of receiving your estimate. If you choose this option, a claim will not be filed with your insurance.
Although we are no longer able to guarantee a maximum out-of-pocket price, the Center for Jewish Genetics remains committed to ensuring that no one has to forgo testing due to a financial barrier. If you need financial assistance please e-mail our genetic counselor, Aishwarya Arjunan, at firstname.lastname@example.org
Although we are no longer able to guarantee a maximum out-of-pocket price, the Center for Jewish Genetics remains committed to ensuring that no one has to forgo testing due to a financial barrier. If you need financial assistance please e-mail our genetic counselor, Aishwarya Arjunan, at email@example.com.
Does the program screen for BRCA or other cancer predisposition mutations?
No, the Center does not offer screening for cancer predisposition genes. For those with any family history of breast, ovarian, colon or other cancers, we recommend meeting with a genetic counselor to assess whether the cancer in their family is likely hereditary, and to discuss screening if appropriate. Feel free to contact the Center for referrals.
Is this program the same as Dor Yeshorim?
No. Participants in the Center’s carrier screening and education program receive their complete test results, whereas Dor Yeshorim only reports on compatibility between two individuals prior to engagement. Unlike Dor Yeshorim, the Center offers screening to everyone, regardless of relationship or pregnancy status. Also, the Center's screening panel includes many pan-ethnic disorders not included by Dor Yeshorim.