Hereditary Cancer Resources


The Norton & Elaine Sarnoff Center for Jewish Genetics provides education about hereditary cancers and offers access to expertise through our genetic counselor, who is available to answer questions, provide guidance and help community members identify local clinical resources.  

Our goal is to connect you with the information and support you need. You can begin by browsing the resources below or contact us at (312) 357- 4718 or JewishGenetics@juf.org for more information. 

Breast and Ovarian Cancer

Jewish Organizations

FORCE: Facing Our Risk of Cancer Empowered
FORCE focuses on BRCA mutations and has Jewish-related resources. FORCE’s overall goal is to improve the lives of individuals and families affected by hereditary breast and ovarian cancers. 

Sharsheret  
Sharsheret provides culturally sensitive support to Jewish women who are newly diagnosed with breast cancer as well as to those facing an increased risk of developing breast cancer. 

Oneinforty
Oneinfourty raises awareness of the one-in-forty risk to Ashkenazi Jews of inheriting BRCA gene mutations and provides the support individuals and families need to effectively manage their cancer risk. 

General Organizations 

Basser Center for BRCA 
The Basser Center for BRCA is the first comprehensive center for the research, treatment, and prevention of BRCA-related cancers.  

Bright Pink
Bright Pink is the only national non-profit organization focusing on the prevention and early detection of breast and ovarian cancer in young women, while providing support for high-risk individuals.

National Ovarian Cancer Coalition
The NOCC aims to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer.

Young Survival Coalition 
The YSC is an international organization dedicated to the critical issues unique to young women facing breast cancer.

WomenLab
WomanLab aims to educate women facing cancer about the preservation and recovery of their sexual function during and after treatment.  

Pancreatic and Colorectal Cancer

CCARE: Colon Cancer Alliance for Research and Education for Lynch Syndrome 
CCARE is a national nonprofit dedicated to increasing awareness, education and research for Lynch syndrome, a hereditary cause of ovarian, uterine and colorectal cancers.

Colorectal Cancer Alliance 
The CCA provides fact sheets and lists clinical trials and information about becoming involved with clinical trials, genetics, news, advocacy and legislative efforts, and information on support.

Hereditary Colon Cancer Takes Guts
HCC Takes Guts provides information about different hereditary colorectal cancer syndromes, as well as access to peer support. 

Hirshberg Foundation for Pancreatic Cancer Research
The Hirshberg Foundation for Pancreatic Cancer Research is a national, nonprofit organization dedicated to advancing pancreatic cancer research, and providing information, resources, and support to pancreatic cancer patients and their families.

Let's Win Pancreatic Cancer 
Let’s Win enables doctors, scientists, and patients to share fast-breaking information on potentially life-saving pancreatic cancer treatments and clinical trials. 

The National Pancreas Foundation
The National Pancreas Foundation provides funding for cutting edge research, advocates for new and better therapies, and provides support and education for patients, caregivers, and health care professionals.

Rolfe Pancreatic Cancer Foundation
The Rolfe Pancreatic Cancer Foundation provides funding toward pancreatic cancer research and increased quality of service for pancreatic cancer patients and their families. 

Cancer Support Groups and Programs

Cancer Wellness Center 
The Center Wellness Center provides education, wellness services and psychosocial support to those impacted by cancer and their loved ones.

Gilda's Club
Gilda's Club offers free programs for men, women, children, and their families and friends whose lives have been impacted by any kind of cancer. 

Imerman Angels 
Imerman Angels provides free one-on-one peer support to cancer fighters, survivors and caregivers.

Cancer Hope Network
Cancer Hope Network provides free one-on-one confidential support to all people impacted by cancer, along the entire continuum from diagnosis through survivorship. 

Information for Caregiver

Help for Cancer Caregivers 
Help for Cancer Caregivers is a unique collaboration of organizations with a shared goal of improving the health and well-being of the people who care for people with cancer.

Family Caregiver Alliance 
Family Caregiver Alliance is the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care for loved ones at home. 

Caregiver Action Network 
Caregiver Action Network works to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Cancer Education and Research

American Association for Cancer Research
AACR fosters the exchange of knowledge and new ideas among scientists dedicated to cancer research, to increase public understanding of cancer.

American Cancer Society
The ACS provides materials for those affected by cancer. There are education resources for health care professionals as well as for the community at large.

Centers for Disease Control and Prevention: Colorectal Cancer
The CDC provides information for patients, health care professionals, and the general community regarding colorectal cancer and its treatments.

Centers for Disease Control and Prevention: Hereditary Breast and Ovarian Cancer
The CDC provides information for patients, health care professionals, and the general community about hereditary breast and ovarian cancer.

National Cancer Institute
The NCI website provides resources on all types of cancers. It is maintained by the U.S. government and is available in English and Spanish.

National Cancer Institute: BRCA 1 & BRCA 2
The NCI provides educational materials and genetic information in English and Spanish for those interested in learning more about breast and ovarian cancer, including BRCA1 and BRCA2 mutations.

National Cancer Institute: Colon And Rectal Cancer
The NCI provides education, treatments, research, literature and genetic information for those affected by colon and rectal cancer (English and Spanish).

National Cancer Institute: The Genetics of Cancer
This site provides a variety of resources specifically regarding cancer genetics – in English and Spanish.

National Cancer Institute 
The NCI website provides resources on all types of cancers. It is maintained by the U.S. government and is available in English and Spanish.

National Cancer Institute: BRCA 1 & BRCA 2
The NCI provides educational materials and genetic information in English and Spanish for those interested in learning more about breast and ovarian cancer, including BRCA1 and BRCA2 mutations.

National Cancer Institute: Colon and Rectal Cancer 
The NCI provides education, treatments, research, literature and genetic information for those affected by colon and rectal cancer – in English and Spanish.

National Cancer Institute: The Genetics of Cancer 
This site provides a variety of resources specifically regarding cancer genetics – in English and Spanish.

Susan G. Komen  
Susan G. Komen is committed to saving lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.

Please note: the resources on this page are provided as a convenience and the Sarnoff Center bears no responsibility for the content of these external sites.  

 

DNA

Direct-to-Consumer Hereditary Cancer Risk Screening: What Our Community Needs to Know

The Norton & Elaine Sarnoff Center for Jewish Genetics cautions regarding the use of direct-to-consumer (DTC) testing to determine one’s personal risk for hereditary cancer. Learn more.

CJG-Whats-In-Your-Genes

Do You Know What's In Your Genes?

What is the most valuable gift you can give to your family? The gift of good health! There are many health conditions that run in families. Knowing your family health history can alert you to the potential risk for a variety of genetic disorders . Talk to your relatives for warning signs and assess your risk for hereditary cancers.

Did you know: Ashkenazi Jews are 10 TIMES more likely to have BRCA mutations, which significantly increases lifetime risks for hereditary cancers, so what does this heightened risk mean for you? Click here to learn more .