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Center for Jewish Genetics blog

Continuing Bipartisan Efforts to Ensure a Brighter Future for Rare Disease Patients

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Now that the election is over, rare disease advocates such as the EveryLife Foundation, Global Genes and the National Organization for Rare Disorders (NORD) have an opportunity to help heal the nation by focusing on issues that cut across the political divide. Rare diseases affect patients regardless of their political preferences. It is now up to  all Americans to work together as advocates and partner with elected officials to ensure a brighter future for rare disease patients.

Advocates are well-positioned to have a bipartisan impact in 2016 and beyond. The patient community has generated outstanding momentum to help ensure that 21st Century Cures reaches the President’s desk before time runs out this year. This legislation could be a game-changer for the rare disease community and is an opportunity for f for representative of both parties to unite behind this critical legislation. It is in this spirit that the EveryLife Foundation has partnered with Global Genes and NORD to launch a United Rare Disease Day of Action on Tuesday, November 15th.  

To learn more, please visit our 21st Century Cures Action Center.

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In 2017, rare disease advocates look forward to working with Congress and the Trump Administration to ensure that rare disease patients continue to have a strong voice in Washington, DC.

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Affordable, Accessible Genetic Screening in Illinois

Our affordable, accessible carrier screening program uses advanced technology to provide comprehensive screening for Jewish and interfaith couples. Visit our Get Screened page to learn more and register.

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Do You Know What's In Your Genes?

What is the most valuable gift you can give to your family? The gift of good health! There are many health conditions that run in families. Knowing your family health history can alert you to the potential risk for a variety of genetic disorders . Talk to your relatives for warning signs and assess your risk for hereditary cancers.

Did you know: Ashkenazi Jews are 10 TIMES more likely to have BRCA mutations, which significantly increases lifetime risks for hereditary cancers, so what does this heightened risk mean for you? Click here to learn more .