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College StudentsYou may not think the term "Jewish genetics" relates to you, but "Jewish" is not just a religion, it is an ethnicity, and "genetics" are a part of you. Learn more about your ethnicity, what students think and how some have be affected. What "Jewish Genetics" Means to Me
A Sister, A StoryWhen I think of my family, I think of my mom, dad and two younger sisters, Becky and Ellie. I feel like we are a typical suburban family. Sometimes I forget that I have grown up with a sister who has a genetic disorder.
My sister Ellie was born when I was six and was diagnosed with Ring 18, a chromosomal abnormality equally rare both in the general population and within the Jewish community. Aside from her medical needs, she used to have strange fears, including fears of candles, crowds, loud noises and clapping. This meant that Ellie refused to be present at birthday and Hanukkah parties, shows and other similar gatherings. My family got used to having someone stand in the hall with her at any type of show or service, and we wouldn’t sing happy birthday because it scared her to tears. Ellie would never come to shows Becky or I were in, which was dificult because we have been very involved in theater and music from a young age. Ellie also sat out in the hall during both Becky’s and my Bat Mitzvah. Although it didn't really bother me because I knew how afraid she was, it was sad that my little sister never came to my performances. Ellie recently had the courage to have her own Bat Mitzvah. It was one of my family’s proudest moments to see her on the bima reciting prayers and reading the Torah. She also now participates in plays herself! Ellie has made tremendous improvements, and my family is eager to see her continue to grow.
Ellie has a great sense of humor, and is upset when Becky or I are sad; everyone who meets Ellie loves her because she is so calm and easygoing. Through growing up with her, I have learned patience and respect for anyone with special needs and their families. It is because of Ellie that I am seeking a career in genetics, and I would not be the person I am today if it weren’t for my little sister.
Dena Goldberg, Sophomore, University of Illinois, Urbana-Champaign
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All Rights Reserved 2008 Chicago Center for Jewish Genetic Disorders |
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